A Sensory Ride: What Would The Bus Say?

 

A Sensory Ride2

Hi Stevie, this is Bus.

I was watching you today, as I do most school days.  I saw you trying to get comfortable but the seat-belt was too tight and you couldn’t lean forward at all. It isn't supposed to be that way.

You should be able to shift your position and sit comfortably on my bench seat. It isn’t a part of me—that car seat with the harness buckle. I just want you to know that.

I have gentle seat-belts like you have in the cars in your driveway. My belts would never keep you so tightly against my bench back that you can’t take a deep breath without feeling restricted by the straps.

Maybe you could ask the Ed Techs to loosen the straps for you?  It would be a lot better than getting upset because you aren’t comfortable. I think it would take the edge off, and help you relax into my seats.

Lately, I’ve felt your bouncing more on my bench seats. I am glad my cushions could absorb that energy for you so you don’t get hurt. Can you imagine if they were metal or wooden benches? That would make a painful ride. My bouncy seats keep people comfortable while they ride on me.

When I come to a stop sign, I must stop. My bounciness also stops. When the bouncing stops, you start to get antsy like you want to keep on bouncing. Then you start thrashing and kicking and that is really hard on me.

But it must be helping you in some way or you wouldn’t do it.

Is my engine causing a vibration that is like a tickle to you so you kick into me to stop the vibes? Maybe you just like the deep-pressure sensation in your legs when you kick the seat in front of you?

Your cries are loud and my frame and cushions absorb it from you so it doesn’t stay out in the open to hurt your ears.  The problem is the other people on my benches also hear your wailing, and they can’t absorb it like I can.

It hurts them.  I see the smaller ones cover their ears to muffle the sounds. I see the bigger ones try to calm you down.

Most of the time it doesn’t work so they hold you back against my seat. They are trying to keep you from getting up from your seat while I’m moving.  They just want to keep you safe!

It looks terrifying to see you held back against me like that. Your face changes with every muscle tight.  Drops stroll down from your reddened eyes, glistening as the travel off your face. Your body stiffens and contorts, and become so very strong!  You try everything to be loose of them.

They aren’t trying to hurt you. It’s just the opposite: they are trying to help you!  They would let go of you if you could be safe while you sit in my seat.

Remember when you would bring all your stuffed critters with you to play with on my seats? That was a great way to entertain yourself and stay calm on the bus!  But then you started throwing them at the driver.  Those toys didn’t hurt me though.  Now they are up front by my face, next to the driver’s seat so I get to enjoy them.  (And, I think the driver likes them too.)

Your critters are soft, vibrant and fun to look at. When I used watch you play with them, it made me really happy, just like you!

Your happiness spreads to everyone around you—especially to me.  I could watch you all day long. Your sweet face barely contains all the happiness it expresses. Your eyes look big and deep into your critters as your mouth stretches wide, like it’s not possible to hold back the joy within your heart. Sound almost escapes but you don’t want to make the noise. It would be so loud and hurt your ears so you hold that all inside. It thrills me to see you overwhelmed by joy.

Most people who ride on my seats don’t experience the intensity of emotions that you do.  Most riders stifle their feelings, because of the other people around them. But you don’t. You are pure 100% “you”--  un-hindered.

It is a breath of fresh air for me. It’s like opening my windows to have someone like you ride me every day to school.

So I am happy to absorb your extra sounds and energy when you need me too. I am here and I am able to handle it. I will absorb all I can and try my best to give you a nice ride to and from school each day.

You are welcome on my seats and I am happy to assist you.

With much love and adoration,

Bus 35

At this time, Stevie is doing great on his bus to and from school!  For many years (and still from time-to-time) he had extreme difficulties with panic attacks and sensory issues on the bus.  This post is written with intent to explore some of the reasons why it had been so hard for him.  

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Welcome to the Sensory Blog Hop -- a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it's like to have Sensory Processing Disorder and to raise a sensory kiddo!

Want to join in on next month's Sensory Blog Hop? Click here!


No Long-Sleeved Shirts Please!

No Long-Sleeved ShirtsThis is Stevie, here. I am 10 years old and I do not like to wear clothes. Now that summer is turning fast to a chilly autumn, everyone is worried I will be cold.  They want me to wear sweatshirts or coats, or long sleeve shirts.  I do not want to wear long sleeves. I’d rather be cold than put up with having sleeves on my arms.  Sleeves get in my way, and they are a constant irritant. When I do wear them, I push them up  high above my elbows anyway!  A lot of good that does, and then my elbows are not comfortable either.

When I was little, my skin was covered with an itchy painful rash. It was on my forehead, my eyes, my chin and cheeks. My arms, legs and tummy were covered too. And what was the worst was the tops of my feet!  I couldn’t even wear shoes because they would tie or velcro right on top of the itchy spots! It was horrible

I even remember my eyes itching. I would scratch them in my sleep and then they would hurt so I cried. My mom would come and try to stop me from scratching my eyes.  I think that is when they had me tested for food allergies.  I have a lot of those, it turns out.

One of my allergies is latex.  Do you know how many clothes have latex in them? My mom even found out some of the socks I had? Were made with latex! No wonder I didn’t like socks!  The bands of my underwear had latex, and my carpet was backed with latex.  It was no wonder I was so itchy before we removed all those things!

Even with avoiding latex and the food that makes me sick, my skin is still itchy. Sometimes when I scratch it, the skin will rise up and then it itches even more!  I pinch and twist it to “scratch” the itch so I don’t hurt myself with my nails.  Sometimes I can’t stand to be in my own skin at all, let alone wear clothes on top of it.  That is like wearing 2 skins and it makes no way to get to the itchy spots when they bother me.

When I need to scratch a spot, I will do anything to get to it. I don’t care where I am, I will take off my clothes so I can scratch.

Sometimes loose clothes, like t-shirt sleeves, will lightly brush up against my arm and that makes me cringe. It is like the worst kind of tickle—that light one. I like the deep kind but not the lighter, bugs-crawling-on-me kind.

My mom got me a new kind of shirt that’s stretchy and tight fitting.  I liked that because it doesn’t get in my way.  It doesn’t bad-tickle me either. The only problem is that because it’s tight, it is also hard to get off!  And when I need it off, I need it off right away, so I can scratch all the itches.  I am getting better at asking for help at school now, instead of getting mad and ripping my clothes off. I always ask my mom or dad for help, but since they aren’t at school, I never thought to ask there. But now I do. It’s much better to ask for help than to get really upset.

I just don’t see why I can’t wear the same things all year long.  Short-sleeved shirts and shorts in the winter would be fine with me.  Sure, it’s cold, but that’s ok. I will just be super-fast when I’m getting to and from the bus!  It’s warm inside. So if I layer up and dress for the outside, then I get overheated in the inside. There is just no winning.  I would rather be cold than hot though.  Plus, it is kinda fun to hop off the bus after school wearing shorts when it’s snowing out. My mom always says something about that when I do it. It makes me smile because I’m proud of myself for being me and getting away with it.

This post is written by Stevie's mom, giving voice to Stevie as best she could. This may not represents reality, just his mom's perspective of what her son with autism's reality may be. 

Welcome to the Sensory Blog Hop -- a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it's like to have Sensory Processing Disorder and to raise a sensory kiddo!

Want to join in on next month's Sensory Blog Hop? Click here!

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